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Friday, September 19, 2008

Open Invitation!

The Ridgway's are going to Disneyland again!


Are those expressions priceless or what!?!

That's right, it is our favorite place and we are on our way again at the end of the month.  The invitation is open to any and all who would like to join us.  Note: it's good to go to Disneyland with the Ridgway's.  We learned everything we know about the "Magic Kingdom" from our dear friends the Spencer family and we thank them profusely!  We will be leaving at the end of the month.  If you would like to join us, let me know and I will tell you the dates.  Come on, you know you want to come.  It really is the "happiest place on earth!"  On a more serious note, it really is neat to see your children so excited and I don't know what it is, but Disneyland really does make me happy...it's the fairy tale world you escape into for me I think.

I took Emerson to her pediatrician this week for her fainting spell and although she felt like it was all due to dehydration and low blood sugar she sent us to a cardiologist just to be sure.  The moment she said that she wanted us to see a cardiologist I started to panic.  So many way too recent emotions came rushing back to the surface and I worried that Emerson might have a heart issue as well.  Of course, I started to cry and thankfully we know our pediatrician very well so we just chatted for a while.  Well, I took Emerson this morning to the cardiologist and after a number of tests (multiple blood pressures, a pulse ox reading, an ECG and a complete physical),which I was told are routine for any child that visits, we were given a clean bill of heart health for Emerson.  Boy did that make me breath easier!  They agreed that her fainting spell was due to dehydration, elevation (we were camping in the mountains) and low blood sugar.  Basically, I have to keep her tank full or she will run out of gas.  She was so exceptionally good through all of it and I am so proud of how brave she is for her age.  This will be comical for all of the heart mommies out there.  When they hooked her up to the pulse oximeter, which reads how much oxygen your blood is carrying, they put it on her big toe and it immediately read 99-100.  The nurse got so excited and said "WOW, I NEVER see that number in here!"  You can't get any higher than 100 so that was a good sign.

Marcus and I have also decided to see a geneticist before we have another child.  I called today to make an appointment with the MD that was referred by my OB.  When I explained our situation, the nurse spoke with the doctor and told me that we do not need genetic tests for Eden's and Emerson's issues.  The only way to make sure it did not happen again would be to
do IVF (invitro).  I did not know what to say so I just thanked her and hung up.  Who knows, maybe they both really were fluke incidents, but I was hoping to have some tests done to make sure.

Ainsley had a break through this week with Eden's death.  She has been waking up at night quite often since Eden passed and whenever we ask her at night what is wrong, she can't give us an answer.  At dinner the other night she finally told us that the reason she wakes up at night is because she wants to talk about Eden.  We told her she could talk about her any time she wanted and we would answer any and all of her questions.  She then said "Eden is really never coming home is she?"  To which Marcus responded "No Ainsley, Eden will never live with us in our home.  She lives in heaven now with Jesus."  Ainsley then said, "but, she will live with us again when the Resurrection happens, right?!?"  We answered yes, but that we did not know when that would be and it will probably be a long time from now.  She instantly started crying and got so sad.  It was like she finally understood.  You might remember the photos I posted of the funeral.  There was one picture of a paper figure Ainsley made that represented Eden and she hung it on the fridge.  It has been on our fridge ever since, until a few nights ago.  Right after our conversation, she walked over to the fridge and started taking it down.  When I asked her what she was doing she said, "we don't need this here anymore because Eden is never coming home to our house to live so I want to throw it away."  It was so difficult for Marcus and I watch her take it down, but we had to let her do it because we both think it's her way of grieving and moving forward.  I could not throw it away so I put it in her scrapbook and shed a few tears.  I was so naive to think that Eden's death would not effect my girls, however they prove that it has been very difficult for them as well and they miss her and mourn her loss just as much as Marcus and I.

Despite the challenge it is to move forward and deal with this situation, I really feel like our little family is so blessed.  Having Eden in our family has blessed and strengthened us more than I can express.  I love Eden and I will always miss her, but how thankful I am for the 4 months I had with her on earth before Heavenly Father called her home.

8 comments:

Shari Tate said...

Good for you! I wish our kids were that little again and loved it like yours do! We used to go every year at spring break (before everyone else figured that out!) We are venturing to Orlando the end of Oct for our 'last' family trip until the boys come home from missions... our first time!
Ainsley is an incredible little girl....kids are so smart these days. I don't know if I new what the resurrection was at her age....thanks for sharing with us....

Heather said...

Your girls are too smart! My Logan can't even pronounce the word resurrection nevermind know what it is :) I'm sad that we can't go to Disneyland :( This is twice now-but who's counting. Have Fun! And I'm glad Emerson is okay!!!!

likeschocolate said...

Yes, I can understand that panic of what it must have been to take her to a cardiologist. We can also understand the baby thing. We so want another child, but with having a miscarriage before Roman and then Roman is it safe? I saw today on a show called Dr's that most miscarriage are either a result of a cardiac issue or genetic issues. I guess this is where prayer and faith come in. My prayers will be with you as you try to make these hard decisions. It is sweet to see how in love your daughters are with Eden. I am glad that you guys allow her talk about it so much given the pain it must bring you, but it is so healthy for her to be able to process it and be allowed to grieve. Have fun in Disney! Too bad we live on the wrong coast.

The Mason Family said...

Hi Keisa...My name is Shannon, also a heart mom, and I have been following your story for some time now. We live in Southern California and are annual pass holders and we would love to meet yourself, Marcus and your beautiful girls one day at Disneyland. I have two daughters ages 5 and 2 1/2, and I'm sure that they would have a blast playing with Ainsley and Emerson. Please feel to contact me if you'd like to set something up...best wishes!

Shannon Mason
www.carepages.com
cp:CarlieMichelle

WheresMyAngels said...

Every post brings tears to my eyes. Your daughters are so smart and lovely.

Mercede may have fainted at school on friday (nurse and teacher have different opinions, teacher saw it though and nurse didn't), she has never done that before. She is on a new med, plus her last labs showed low glucose. But of course her heart also runs though my mind. Sure hope it isn't that as our Cardiologist retired and we are looking for a new one :(

Have a great trip!

everything petersen said...

Disneyland....oh we love it there also. You know we went in March and had a blast. I would love to go the end of this month. They have it all Halloweened up!

I am so glad Emerson is fine. You will just have to watch her.

Em said...

We saw the Geneticist at Primary Children's hospital. They did do blood tests on my husband Mike, and were are trying to get his family all enrolled in a study through Baylor(sp?) University in Texas to see where the genetic predisposition for heart defects is (whether it is just Mike and his twin or other siblings.)Because we have two immediate CHD's (Ryker and Mike) and then the niece with a CHD, we have a 25-50%chance of having another child with a CHD. Those are high risks to us. But the geneticist (who shares our same LDS faith) told us he has only told one person in his career to not have any more kids. He said although the risk is significant, a loving Heavenly Father knows what he is doing. And if we were to have another child with a CHD, it could be one that is repairable, (Mike has a co-arc that was repaired twice and is perfect for now). Your girls are wonderful. What a sad thing to have to finally face. I think it is so much harder on the families who have older children and then lose a sibling. I guess I lucked out in that way, having our first on the other side welcoming Ryker back instead of dealing with the pains of this world of saying-bye. But I am unlucky in the fact that my arms are empty twice over. I'll be honest, this stuff just sucks. Well, I guess we will hang in there. Someday, we will go to Disneyland together. For now, my work, schooling, and nieces and nephews needing tended keeps us from taking a real vacation.
Heart hugs and prayers,
Emily

Amber Webb said...

Wow I hope you guys have a blast. Wed love to come but I can barely leave my house right now let a lone drive to Cali and walk around a park. I hope you will post pics when you guys get home.

Hey shoot me an email at kenliesmom@gmail.com if youd like to check out our family blog. I have it password protected.