Creeping Along

We are definitely not out of the woods, but Eden is creeping along.

They did not do her muscle flap procedure until yesterday afternoon around 4 pm and all went well.  Her plastic surgeon is a very professional doctor and al business.  She told us after that she was very pleased with the closure and thinks it should heal up nicer than last time.  I sure hope for Eden's sake that it goes a little smoother.  Her nurse for the last few days, Cindy, called me unexpectedly right before shift change last night just to tell me that she thought Eden was doing well.  She said that she has counted more than 4 doctors over the last few days say that Eden is "one tough little girl."  I am so proud of her and if you could have seen me then grinning from ear to ear.  We all like to hear positive statements about our children and at was super for me.  Of course I know that Eden is tough, special, beautiful, strong, feisty, fabulous and miraculous (I could go on forever!), but it's nice to know that her doctors think so as well.  Although she has a long road ahead of her, I think everyone is cautiously optimistic and pleasantly surprised.  She is still on quite a bit of medication to regulate her heart function, blood pressure, breathing and urine output, but as long as we can continue to ween ever so slowly, that is a plus.

Today was perfectly wonderful for me.   I arrived to see Eden looking pinker than I have ever seen her.  I could not stop commenting on how good her color looks.  She also had her eyes open for more than an hour while I was there so we spent the entire time just talking and looking at each other.  If you didn't know, it has been way too long since Eden could open her eyes.  She was so puffy and retaining so much fluid before surgery that she could not open her eyes even if she wanted.  Mind you, she still has a good amount of fluid to get rid of, but at least she can open her eyes and look around when she's awake.  They took her two chest tubes out and also her catheter so its up to her to pee pee on her own.  It was also so lovely to see her all dolled up.  Cindy is so fabulous at not only taking care of her, but pampering her a little as well.  She had a very cute little yellow barrette holding the front of her hair back and a darling blue and yellow bow adorning her pony tail.  That's right Eden has enough hair to have both a pony tail and barrette and at only 4 months!  That is one thing none of my child have lacked, hair.  All in all, my step was a little lighter as I left the hospital this afternoon and I will sleep happy tonight.

Thank you for your constant love, prayers, kindness, support and faith.  We will never be able to thank you sufficiently.