Well, Eden decided this morning that Wednesday just didn't fit into her social calendar for surgery. She did the only thing she could think of to get out of it, she spiked a fever! She is now officially my little "Stinker Pot." What a roller coaster this is for us as we get anxious and mentally prepared (as well as you can be) and then have it pushed back again. Dr. Pearl is looking now at Monday or Tuesday of next week, but we have all decided not to tell Eden so she doesn't weasel her way out again. I make light of the situation a little, but you have to admit this is crazy. It is like filing an extension for your taxes, it doesn't make you exempt it just delays the inevitable. On a more serious note, they have sent away every culture imaginable for her and nothing so far. She also does not have a fever any longer, but they just can't chance it. Dr. Pearl went into great detail about the surgery and every possible risk and outcome. I will post it in detail later. Know that we appreciate so much all of your love, concern and support. I just remind myself daily that it's the long term outcome that we are most concerned with and we all just want to see Eden healthy and happy as soon as possible. We love and thank you all for everything. I think it is safe to say that Eden has taught many people a great deal and for that, she is my hero!
Tuesday, June 10, 2008
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2 comments:
Little Miss Eden... what are we going to do with you?? Only she knows what she's doing and this is her plan :). I'll be seeing you in the PICU sooner than we wanted... Owen has a cath scheduled for Thursday at 5:30am... his aortic arch is not pretty on the echo...they think they have a narrowing somewhere. Poor guy needed a break!! :)
Definitely one of my heroes! What a turkey! They really do have their very own idea as to how things will be done! We will pray for her still!
Heart hugs,
Emily
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