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Wednesday, June 18, 2008

Feisty Little Lady

A few photos for your enjoyment.  Warning - open sternum photos!

You can see just how much fluid she was carrying.

Post-op "ants."

Her open sternum.  If you look close enough you can see the shunt holding her sternum open to the right and her heart in the center.

Our champion minutes after surgery.

Mom is back.

Eden is doing better than most expected at this point and we are so proud of her and grateful to our Heavenly Father for this blessing.  She is still in a very critical time in her recovery, but every hour that passes is better for her.  Once again, she is hooked up to millions of bells and whistles and a few new things that she did not have after her first surgery.  She has what is in essence her pace maker.  It is helping her heart to fire in a normal rhythm.  We are told that this can be normal since the heart undergoes so much trauma during surgery.  She also has a nitric oxide machine that helps her body get rid of the carbon dioxide in the blood.  She is still on the ventilator, but they said that her chest x-rays looked better as the night progressed.  She just got another x-ray as I type so we will see the progress.  Her medicine tree is full, but I would have to say not as many medications as last time.  Also, if you remember from the last go around, we did not have much pee pee for a while, well little miss is peeing much better at this stage of the game.  She has two chest tubes and a tube from her belly draining all of the fluid from surgery.  Dr. Pearl left her sternum open again, but this time he has a small shunt holding it open so the gap is about 2 inches and we have full view of her beating heart.  Not long ago, Eden decided that she wanted to wake up fully, not a good idea when your sternum is 2 inches open!  She got quite ornery, feisty and agitated so they had to sedate her very heavily.  They actually had to use a sedation that temporarily paralyzed her until her other meds could kick in.  As you might remember me saying, Eden is a bit of a junky so she needs LOTS of drugs to feel the effects.  Although Chris, her nurse, was not happy to see her awake, she did like the fact that she had enough energy and fight to wake up 12 hours after open heart surgery.

We have come quite a ways from not thinking she would make it out of the OR last night.  We are so happy that she is doing well, but we are also very scared to get too hopeful.  We have had so many "false hope" experiences that it is hard.  We do know however, that the Lord is blessing Eden immensely and He is answering many of the prayers so many of us have offered.  We still do not know which  way this will go, but we know we are watched over and this offers us much peace and comfort.  We are so proud of you Eden. 

9 comments:

likeschocolate said...

It has been a while since you posted photos, her hair is turning red just like her sister. How sweet! I am Glad she is fighting. Go Eden!!!!!

4 in 4 said...

Oh, Praise God! Continued prayers for her recovery! Way to go Eden. Keep fighting, girl! Keep Fighting.

Heather said...

she does look better! And she looks like Emerson. We can't wait to kiss her. We're glad everything is going good.-yeah!

The Bowlby Bunch said...

Eden is amazing. I have been thinking about her all day. She is in our prayers! The Bowlbys

WheresMyAngels said...

I just got home and had to hit the putor see if there was an update on how she is doing. I'm so happy to hear she is still fighting the fight! She is strong and resilient. Sorry to hear that you have another sick child!

God bless!

Karen said...

That's a great report considering all that she has been through! We know she's not out of the woods yet, so of course, we'll keep praying for her. What a little trooper she is - Eden - you're awesome!
Karen

Angel said...

We are so happy to hear the news! We love you and are praying for everyone! Love, Angel, Mike, Cade, and Liliana

Em said...

Oh, she is just so sweet. I think one of the biggest blessings of had having a heart baby, is that I see past the tubes and lines, and just see the sweetness of little Eden. I am so grateful that she continues to do well. You guys are so strong and have an even stronger little fighter! We are still praying, and very much there for you.
Heart hugs and prayers,
Emily and Mike

Hadley's Heaven said...

I am praying for your family. I have been following your blog and it touches my heart, the faith you have and the love you have for your family. I love reading how close you are to heavenly father. I will keep all of you in my prayers. God Bless you, Tammy