Thanks to our friends (Tanner and Avery) for all their great information on their blog we have decided to TRY to "blog." Your patience with our learning curve is greatly appreciated.
As you know now what really prompted this was our little Eden Grace Ridgway. She was born February, 29th 2008. She was 6 lbs 6 oz and 19 3/4 inches long. She was so beautiful and we are so excited to have our third little girl. She was also born with a very special gift, Trisomy 21, commonly known as Down Syndrome. We have a blonde (Ainsley), a red head (Emerson) and now a brunette (Eden). WOW, we've covered all the bases. Now all that's left is a BOY!
Eden is now at Phoenix Childrens Hospital in the NICU. Actually, she now is going to surgery. She has HLHS and is undergoing open heart surgery. She will be in surgery for about 5 hours. She was scheduled for surgery at 8 am, but by the time she was taken to the O.R. it was 10:10.
At the last minute they started to think they could do a less evasive surgery. One of Eden's cardiologists sent her echos out for a second opinion to Ohio and are still waiting to hear back. So they thought they would wait for the second opinion. However, after a new echo and after thoughtful prayer we decided to move forward with the original plan.
Last week on Thursday when we spoke with Dr. Pearl, Eden's CT Surgeon, we felt really good and had a wonderful peaceful feeling come over us. Marcus fasted on Thursday and while the doctor was talking he had a wonderful warmth come over him that we were making the right decision and I also felt we were making the right decision. This Sunday Marcus fasted and we both felt good. So when this came up it was a little intense. But we feel good about going forward with the big surgery now.
The doctor said he would look at the mitral valve when he got in there and if it looks good he will do the coarch (sp) and the banding - won't explain unless we decide to do it... but right now we are headed forward with the Norwood procedure.
Lots of prayers and fasting for our family can be felt and we love and appreciate all of you. We will keep you posted on the progress.
Another note: Eden has a little friend she knew before she came here. They were born on the same day, have similar chromosomal issues, almost identical heart conditions and she had her surgery on Friday. Her name is Bela Grace Milne. Please keep her and her parents (Avery and Tanner) in your thoughts and prayers too!
11 comments:
You are in our prayers! We hope all goes well today! My kids can't wait to see her!
We are behind you all 100% and our thoughts are with beautiful, little Eden. Love, Carmen, Blake, Ally & Tim
What a great picture of Eden. We cant wait to see and meet her.
Eden will be in our prayers and thoughts-
Best-
the Bakers
She is so beautiful! Our thoughts and prayers are with you!
Love,
Brummetts
Marcus & Keisa- What a great time for you and your family. Your baby is beautiful. All will go well with you and Eden today. Please let me know if I can babysit or anything.
I love the blog and picture. I can see Keisa in her. She is so cute. You are in our prayers.
Love
the Starks
You are in my prayers I hope your little bundle of joy Eden is doing good remember we love you
Laura Millett
We look forward to an update on the surgery. We really felt like we have been in surgery with you guys today. Bela has had a really busy day and many more to come.
We send our love. What a beautiful little blessing Eden is. We hope everything goes perfectly today and will keep you all in our prayers. Keep up the blogging, you're doing great! We would love to keep track of Eden's progress.
Best wishes and all our love,
Mike and Sarah VanSteenkiste
PS...my friend Brandy said she took care of while you were at Shea. Sorry to have missed you!
Marcus and Keisa- What a beautiful little girl! She is so cute! We are so happy to hear the good news of her surgery! You all are a wonderful family and you will stay in our thoughts and prayers!
Love - Casey, Tiffany, Carter, Grant and Kennedy Orvin
she is so beautiful...
It brings tears to my eyes, she is so special.
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